GEMSS: Genetic resources for educators

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Approximately 1 in every 20 children nationwide has a genetic or metabolic condition like Down syndrome, fragile X syndrome, sickle cell disease, or Phenylketonuria (PKU). The Genetics Education Materials for School Success (GEMSS) website provides educators, other school personnel, and parents with a “one-stop shop” of useful tools and tips for support of students with genetic conditions throughout the school day. Each condition and its symptoms are introduced through a brief description in plain language. From there, site visitors can review strategies for addressing dietary and/or medical needs; special education supports; behavior and sensory supports; physical activity, athletics, school field trips, and other events; school absences and fatigue; and emergency planning. (posted May 3, 2012)


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NOTICE: The National Dissemination Center for Children with Disabilities (NICHCY) is no longer in operation. Our funding from the U.S. Department of Education’s Office of Special Education Programs (OSEP) ended on September 30, 2013. Our website and all its free resources will remain available until September 30, 2014.