National Resources

We hope this resource list helps you connect with the disability information and assistance you're seeking. This list was posted on May 17, 2005. Contact information for organizations, of course, is always changing, while this paper list will not! If you find that you need updated information about an organization, please visit our Web site at: www.nichcy.org. Under "Search for Information," search our "Organizations" library, and you'll find our most current information about these and other organizations. If you still have trouble locating an organization, e-mail us or give us a call.

Autism Information Center, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, (800) CDC-INFO (232-4636), E-mail: bddi@cdc.gov, Web: www.cdc.gov/ncbddd/dd/aic/about/default.htm

Cancer Information Service, National Cancer Institute, Room 3036A, 6116 Executive Blvd., MSC8322, Bethesda, MD 20892-8322, (800) 422-6237 (Voice), (800) 332-8615 (TTY), E-mail: cancergovstaff@mail.nih.gov , Web: http://cancer.gov, Materials available in Spanish, Spanish speaker on staff

Center on Positive Behavioral Interventions and Supports, 1761 Alder Street, 1235 University of Oregon, Eugene, OR 97403-5262, (541) 346-2505, E-mail: pbis@uoregon.edu, Web: www.pbis.org, Materials available in Spanish

Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services, Communication & Media Services, Room 3132, Switzer Building, 330 C Street S.W., Washington, DC 20202-2524, (202) 205-8241 (Voice), (202) 205-0136 (TTY)

DB-LINK, National Information Clearinghouse on Children, Who Are Deaf-Blind, 345 N. Monmouth Avenue, Monmouth, OR 97361, (800) 438-9376 (Voice), (800) 854-7013 (TTY), E-mail: dblink@tr.wou.edu, Web: www.dblink.org, Materials available in Spanish

ERIC Clearinghouse on Disabilities and Gifted Education, Council for Exceptional Children (CEC), (Project is no longer in operation, but a substantial Web site of disability-related materials is still available.)
Web: http://ericec.org

ERIC System, Educational Resources Information Center, (800) 538-3742, Web: http://eric.ed.gov

Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence, Center for Substance Abuse Prevention, Substance Abuse and Mental Health Services Administration, 2101 Gaither Road, Ste. 600, Rockville, MD 20850, (866) 786-7327, E-mail via the Web Form at: www.fascenter.samhsa.gov/about/contactUs/index.cfm, Web: http://www.fascenter.samhsa.gov/index.cfm

Genetic and Rare Diseases Information Center, P.O. Box 8126, Gaithersburg, MD 20898-8126, (888) 205-2311 (Voice), (888) 205-3223 (TTY), E-mail: gardinfo@nig.gov, Web: http://rarediseases.info.nih.gov/index.html, Spanish speaker on staff

HEATH Resource Center (National Clearinghouse, on Postsecondary Education for Individuals with, Disabilities), The George Washington University, 2121 K Street N.W., Suite 220, Washington, DC 20037, (800) 544-3284 (V/TTY), (202) 973-0904, E-mail: askheath@heath.gwu.edu, Web: www.heath.gwu.edu

HRSA Information Center (for publications and resources on health care services for low-income, uninsured individuals and those with special health care needs), Health Resources and Services Administration , U.S. Department of Health and Human Services, Parklawn Building, 5600 Fishers Lane, Rockville, MD 20857, (888) 275-4772, E-mail: ask@hrsa.gov, Web: www.ask.hrsa.gov, Publications available in Spanish, Spanish speaker on staff

Laurent Clerc National Deaf Education Center and Clearinghouse, KDES PAS-6, 800 Florida Avenue, NE, Washington, DC 20002-3695, (202) 651-5051 (V), (202) 651-5052 (TTY), E-mail: Clearinghouse.InfoToGo@gallaudet.edu, Web: http://clerccenter.gallaudet.edu/InfoToGo

National Center on Birth Defects and Developmental Disabilities, Department of Health and Human Services, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, (404) 639-3534, (800) 311-3435, E-mail: bddi@cdc.gov, Web: www.cdc.gov/ncbddd/

National Center for Infectious Diseases (NCID), Centers for Disease Control and Prevention, Mailstop C-14, 1600 Clifton Road, Atlanta, GA 30333, (404) 639-3534, (800) 311-3435, E-mail: Use form at www.cdc.gov/ncidod/feedback1.htm, Web: www.cdc.gov/ncidod

National Center on Secondary Education and Transition, University of Minnesota, 6 Pattee Hall, 150 Pillsbury Drive S.E., Minneapolis, MN 55455, (612) 624-2097, E-mail: ncset@umn.edu, Web: www.ncset.org

National Clearinghouse for Alcohol and Drug Information (NCADI), P.O. Box 2345, Rockville, MD 20847-2345, (800) 729-6686, (877) 767-8432 (españ, ol), (301) 468-2600, (800) 487-4899 (TTY), E-mail: info@health.org, Web: www.health.org, Materials available in Spanish, Spanish speaker on staff

National Diabetes Information Clearinghouse, One Information Way, Bethesda, MD 20892, (800) 860-8747, (301) 654-3327, E-mail: ndic@info.niddk.nih.gov , or via the Web Form at: http://diabetes.niddk.nih.gov/about/contact.htm, Web: http://diabetes.niddk.nih.gov/about/index.htm
Materials available in Spanish

National Digestive Diseases Information Clearinghouse, Two Information Way, Bethesda, MD 20892, (800) 891-5389, (301) 654-3810, E-mail: nddic@info.niddk.nih.gov, or via the Web Form at: http://digestive.niddk.nih.gov/about/contact.htm, Web: http://digestive.niddk.nih.gov/about/index.htm, Materials available in Spanish

National Health Information Center, P.O. Box 1133, Washington, D.C. 20013-1133, (800) 336-4797, (301) 565-4167, E-mail: info@nhic.org, Web: www.health.gov/nhic/, Materials available in Spanish, Spanish speaker on staff

National Heart, Lung, and Blood Institute Information Center, P.O. Box 30105, Bethesda, MD 20824-0105, (800) 575-9355, (301) 592-8573, (240) 629-3255 (TTY), E-mail: NHLBIinfo@rover.nhlbi.nih.gov, Web: www.nhlbi.nih.gov, Spanish speaker on staff

National Institute of Allergy and Infectious Diseases (NIAID), 31 Center Drive, MSC 2520, Building 31, Room 7A-50, Bethesda, MD 20892-2520, (301) 496-2263, Web: www.niaid.nih.gov

National Institute of Arthritis and Musculoskeletal, and Skin Diseases, Information Clearinghouse, 1 AMS Circle, Bethesda, MD 20892-3675, (877) 226-4267, (301) 495-4484 (Voice), (301) 565-2966 (TTY), E-mail: NIAMSinfo@mail.nih.gov, Web: www.niams.nih.gov, Materials available in Spanish, Spanish speaker on staff

National Institute of Neurological Disorders & Stroke (NINDS), NIH Neurological Institute, P.O. Box 5801, Bethesda, MD 20824, (800) 352-9424, (301) 496-5751, (301) 468-5981(TTY), E-mail via the Web Form at: http://www.ninds.nih.gov/contact_us.htm
Web: www.ninds.nih.gov, Materials available in Spanish, Spanish speaker on staff

National Institute on Deafness and Other Communication Disorders Clearinghouse, 31 Center Drive, MCS 2320, Bethesda, MD 20892-3456, (800) 241-1044 (V), (800) 241-1055 (TTY), E-mail: nidcdinfo@nidcd.nih.gov, Web: www.nidcd.nih.gov, Materials available in Spanish, Spanish speaker on staff

National Institute on Mental Health (NIMH), Public Inquiries, 6001 Executive Boulevard, Room 8184, MSC 9663, Bethesda, MD 20892-9663, (866) 615-6464, (301) 443-4513 (V), 301) 443-8431 (TTY), E-mail: nimhinfo@nih.gov, Web: www.nimh.nih.gov/publicat/index.cfm, Materials available in Spanish, Spanish speaker on staff

National Kidney and Urologic Diseases Information Clearinghouse, Three Information Way, Bethesda, MD 20892, (800) 891-5390, (301) 654-3327, E-mail: nkudic@info.niddk.nih.gov or via the Web form at: http://kidney.niddk.nih.gov/about/contact.htm, Web: http://kidney.niddk.nih.gov/about/index.htm, Materials available in Spanish

National Lead Information Center, 422 South Clinton Avenue, Rochester, NY 14620, (800) 424-5323, E-mail via the Web site., Web: www.epa.gov/lead/nlic.htm, Materials available in Spanish, Spanish speaker on staff

National Organization for Rare Disorders (NORD), P.O. Box 1968, Danbury, CT 06813-1968, (800) 999-6673, (203) 744-0100 (Voice), (203) 797-9590 (TTY), E-mail: orphan@rarediseases.org, Web: www.rarediseases.org

National Rehabilitation Information Center (NARIC), 4200 Forbes Boulevard, Suite 202, Lanham, MD 20706, (800) 346-2742, (301) 459-5900, (301) 459-5984 (TTY), E-mail: naricinfo@heitechservices.com, Web: www.naric.com

Research and Training Center on Family Support and Children's Mental Health, Portland State University, P.O. Box 751, Portland, OR 97207-0751, (503) 725-4040 (Voice), (503) 725-4165 (TTY), E-mail: gordon1@pdx.edu, Web: www.rtc.pdx.edu/, Materials available in Spanish, Spanish speaker on staff

Research and Training Center on Independent Living, University of Kansas, 4089 Dole Building, 1000 Sunnyside Ave., Lawrence, KS 66045-7555, (785) 864-4095 (Voice), (785) 864-0706 (TTY), E-mail: rtcil@ku.edu, Web: www.rtcil.org, Materials available in Spanish

Weight-Control Information Network (WIN), 1 WIN Way, Bethesda, MD 20892-3665, (202) 828-1025, (877) 946-4627, E-mail: win@info.niddk.nih.gov, Web: http://win.niddk.nih.gov/index.htm

Back to top

Alexander Graham Bell Association for the Deaf and Hard of Hearing, 3417 Volta Place N.W., Washington, DC 20007, (866) 337-5220, (202) 337-5220 (Voice), (202) 337-5221 (TTY), E-mail: parents@agbell.org, Web: www.agbell.org, Materials available in Spanish, Spanish speaker on staff

Alliance for Technology Access, 1304 Southpoint Blvd., Suite 240, Petaluma, CA 94954, (707) 778-3011, (707) 778-3015 (TTY), E-mail: atainfo@ataccess.org, Web: www.ataccess.org

American Association of Kidney Patients (AAKP), 3505 Frontage Road, Suite 315, Tampa, FL 33607, (800) 749-2257, (813) 636-8100, E-mail: info@aakp.org, Web: www.aakp.org, Materials available in Spanish, Spanish speaker on staff

American Association of Suicidology (to find a support group), 5221 Wisconsin Avenue, N.W., Washington, DC 20015, (800) 273-8255, (202) 237-2280, E-mail: info@suicidology.org, Web: www.suicidology.org

American Brain Tumor Association, 2720 River Road, Des Moines IA 60018, (847) 827-9910, (800) 886-2282 (Patient Services), E-mail: info@abta.org, Web: www.abta.org/, One publication in Spanish

American Council of the Blind, 1155 15th Street N.W., Suite1004, Washington, DC 20005, (800) 424-8666, (202) 467-5081, E-mail: info@acb.org, Web: www.acb.org

American Diabetes Association, 1701 N. Beauregard Street, Alexandria, VA 22311, (800) 342-2383, (703) 549-1500, E-mail: AskADA@diabetes.org, Web: www.diabetes.org, Materials available in Spanish, Spanish speaker on staff

American Foundation for the Blind (AFB), 11 Penn Plaza, Suite 300, New York, NY 10001, (800) 232-5463, (212) 502-7662 (TTY), E-mail: afbinfo@afb.net, Web: www.afb.org, Materials available in Spanish, Spanish speaker on staff

American Heart Association-National Center, 7272 Greenville Avenue, Dallas, TX 75231, (800) 242-8721, (214) 373-6300, E-mail: inquire@amhrt.org, Web: www.americanheart.org, Materials available in Spanish

American Liver Foundation, 75 Maiden Lane, Suite 603, New York, NY 10038, (800) 465-4872, (888) 443-7872, (212) 668-1000, E-mail: info@liverfoundation.org, Web: www.liverfoundation.org, Materials available in Spanish

American Lung Association, 61 Broadway, 6th Floor, New York, NY 10006, (800) 586-4872, (212) 315-8700, E-mail via Web site., Web: www.lungusa.org/, Materials available in Spanish, Spanish speaker on staff

American Occupational Therapy Association (AOTA), 4720 Montgomery Lane, P.O. Box 31220, Bethesda, MD 20824-1220, (301) 652-2682 (Voice), (800) 377-8555 (TTY), Web: www.aota.org

American Physical Therapy Association (APTA), 1111 North Fairfax Street, Alexandria, VA 22314, (800) 999-2782, (703) 684-2782 (Voice) , (703) 683-6748 (TTY), E-mail: practice@apta.org, Web: www.apta.org, Materials available in Spanish, Spanish speaker on staff

American Society for Deaf Children, P.O. Box 3355, Gettysburg, PA 17325, (800) 942-2732, (717) 334-7922 (V/TTY), E-mail: asdc@deafchildren.org, Web: www.deafchildren.org

American Speech-Language-Hearing Association (ASHA), 10801 Rockville Pike, Rockville, MD 20852 , (800) 638-8255, (301) 897-5700 (TTY), E-mail: actioncenter@asha.org, Web: www.asha.org, Materials available in Spanish, Spanish speaker on staff

American Syringomyelia Alliance Project, P.O. Box 1586, Longview, TX 75606-1586, (800) 272-7282, (903) 236-7079, E-mail: info@asap.org, Web: www.asap.org

American Therapeutic Recreation Association, 1414 Prince Street, Suite 204, Alexandria, VA 22314, (703) 683-9420, E-mail: atra@atra-tr.org, Web: www.atra-tr.org

Angelman Syndrome Foundation, 3015 E. New York Street, Suite A2265, Aurora, IL 60504, (805) 432-6435, (630) 978-4245 , E-mail: info@angelman.org, Web: www.angelman.org, Materials available in Spanish

Anxiety Disorders Association of America, 8730 Georgia Avenue, Suite 600, Silver Spring, MD 20910, (240) 485-1001, E-mail: AnxDis@adaa.org, Web: www.adaa.org

Aplastic Anemia & MDS International Foundation, Inc., P. O. Box 613, Annapolis, MD 21404-0613, (800) 747-2820, (410) 867-0242, E-mail: help@aamds.org, Web: www.aamds.org, Materials available in Spanish, Spanish speaker on staff

The Arc (formerly the Association for Retarded Citizens of the U.S.), 1010 Wayne Avenue, Suite 650, Silver Spring, MD 20910, (301) 565-3842, E-mail: Info@thearc.org, Web: www.thearc.org

ARCH National Respite Network & Resource Center, Chapel Hill Training-Outreach Project, 800 Eastowne Drive, Suite 105, Chapel Hill, NC 27514, (800) 773-5433 (National Respite Locator Service), (919) 490-5577, Web: www.archrespite.org

Arthritis Foundation, P.O. Box 7669, Atlanta, GA 30357, (800) 568-4045, (404) 872-7100, E-mail: help@arthritis.org, Web: www.arthritis.org, Materials available in Spanish, Spanish speaker on staff

Asthma and Allergy Foundation of America, 1233 20th Street, N.W., Suite 402, Washington, DC 20036, (800) 727-8462, (202) 466-7643, E-mail: info@aafa.org, Web: www.aafa.org/, Materials available in Spanish

Autism Society of America, 7910 Woodmont Avenue, Suite 300, Bethesda, MD 20814-3015, (800) 328-8476, (301) 657-0881, E-mail: info@autism-society.org, Web: www.autism-society.org, Materials available in Spanish

Beach Center on Disability, The University of Kansas, Haworth Hall, Room 3136, 1200 Sunnyside Avenue, Lawrence, KS 66045-7534, (785) 864-7600, (785) 864-3434 (TTY), E-mail: beachcenter@ku.edu, Web: www.beachcenter.org

Best Buddies International, Inc., 100 S.E. Second Street, Suite 1990, Miami, FL 33131, (800) 892-8339, (305) 374-2233, E-mail: info@bestbuddies.org, Web: www.bestbuddies.org

Blind Childrens Center, 4120 Marathon Street, Los Angeles, CA 90029-0159, (323) 664-2153, (800) 222-3566 , E-mail: info@blindchildrenscenter.org, Web: www.blindchildrenscenter.org, Materials available in Spanish, Spanish speaker on staff

Brain Injury Association of America, 8201 Greensboro Dr., Suite 611, McLean, VA 22102, (703) 761-0750, (800) 444-6443, E-mail: FamilyHelpline@biausa.org, Web: www.biausa.org, Materials available in Spanish, Spanish speaker on staff

CADRE (Consortium for Appropriate Dispute Resolution in Special Education), Direction Service, Inc., P.O. Box 51360, Eugene, OR 97405-0906, (541) 686-5060, (541) 284-4740 (TTY) , (800) 695-0285 (NICHCY), E-mail: cadre@directionservice.org, Web: www.directionservice.org/cadre, Materials available in Spanish, Spanish speaker on staff

Center for Effective Collaboration and Practice (CECP), (Improving Services for Children and Youth with Emotional and Behavioral Problems), 1000 Thomas Jefferson St., N.W., Suite 400, Washington, DC 20007, (888) 457-1551, (202) 944-5300, (877) 334-3499 (TTY), E-mail: center@air.org, Web: http://cecp.air.org

Center for Evidence Based Practice: Young Children with Challenging Behavior, Louis de la Parte Florida Mental Health Institute, University of South Florida, 13301 Bruce B. Downs Blvd., Tampa, FL 33612-3807, (813) 974-6111, E-mail: dunlap@fmhi.usf.edu, Web: http://challengingbehavior.fmhi.usf.edu

Center for Universal Design, North Carolina State University, College of Design, Campus Box 8613, Raleigh, NC 27695-8613, (800) 647-6777, (919) 515-3082 (V/TTY), E-mail: cud@ncsu.edu, Web: www.design.ncsu.edu/cud

Child and Adolescent Bipolar Foundation, 1000 Skokie Blvd., Suite 425, Wilmette, IL 60091, (847) 256-8525 , E-mail: cabf@bpkids.org, Web: www.bpkids.org, Materials available in Spanish, Spanish speaker on staff

Childhood Apraxia of Speech Association of North America (CASANA), 123 Eisele Road, Cheswick, PA 15024, (412) 767-6589, (412) 343-7102, E-mail: helpdesk@apraxia-kids.org, Web: www.apraxia-kids.org

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), 8181 Professional Place, Suite 150, Landover, MD 20785, (301) 306-7070, (800) 233-4050 (To request information packet), Web: www.chadd.org, Materials available in Spanish, Spanish speaker on staff

Children's Craniofacial Association, 13140 Coit Road, Suite 307, Dallas, TX 75240, (800) 535-3643, (214) 570-9099, E-mail: contactCCA@ccakids.com, Web: www.ccakids.com

Children's Liver Alliance (Web site only), E-mail: mail@liverkids.org.au, Web: http://www.liverkids.org.au

Children's Tumor Foundation (formerly National Neurofibromatosis Foundation), 95 Pine Street, 16th Floor, New York, NY 10005, (800) 323-7938, (212) 344-6633, E-mail: info@ctf.org, Web: www.ctf.org, Materials available in Spanish, Spanish speaker on staff

Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS), P.O. Box 220398, Charlotte, NC 28222-0398, (800) 442-3437, (704) 365-2343, E-mail: cfids@cfids.org, Web: www.cfids.org

Closing the Gap, Inc.(for information on computer technology in special education and rehabilitation), P.O. Box 68, 526 Main Street, Henderson, MN 56044, (507) 248-3294, Web: www.closingthegap.com

Consortium for Appropriate Dispute Resolution in Special Education, (see CADRE)

Council for Exceptional Children (CEC), 1110 N. Glebe Road, Suite 300, Arlington, VA 22201-5704, (888) 232-7733, (866) 915-5000 (TTY), (703) 620-3660, E-mail: service@cec.sped.org, Web: www.cec.sped.org/

Craniofacial Foundation of America, 975 East Third Street, Box 269, Chattanooga, TN 37403, (800) 418-3223, (423) 778-9192, E-mail: farmertm@erlanger.org, Web: www.erlanger.org/craniofacial/found1.html, Materials available in Spanish, Spanish speaker on staff

Crohn's & Colitis Foundation of America, 386 Park Avenue South, 17th Foor, New York, NY 10016, (800) 932-2423, (212) 685-3440, E-mail: info@ccfa.org, Web: www.ccfa.org, Materials available online only in Spanish, Spanish speaker on staff

Cystic Fibrosis Foundation, 6931 Arlington Road, Bethesda, MD 20814, (800) 344-4823, (301) 951-4422, E-mail: info@cff.org, Web: www.cff.org, Materials available in Spanish, Spanish speaker on staff

Depression and Bipolar Support Alliance, 730 N. Franklin Street, Suite 501, Chicago, IL 60610, (800) 326-3632, (312) 642-0049, E-mail: questions@dbsalliance.org, Web: www.dbsalliance.org, Materials available in Spanish, Spanish speaker on staff

Disability Statistics Rehabilitation, Research and Training Center, 3333 California Street, Room 340, University of California at San Francisco, San Francisco, CA 94118, (415) 502-5210 (Voice), (415) 502-5216 (TTY), E-mail: distats@itsa.ucsf.edu, Web: www.dsc.ucsf.edu

Disabled Sports USA, 451 Hungerford Drive, Suite 100, Rockville, MD 20850, (301) 217-0960 (Voice), (301) 217-0963 (TTY), E-mail: Information@dsusa.org, Web: www.dsusa.org

Easter Seals--National Office, 230 West Monroe Street, Suite 1800, Chicago, IL 60606, (800) 221-6827, (312) 726-6200 (Voice), (312) 726-4258 (TTY), E-Mail: info@easter-seals.org, Web: www.easter-seals.org, Materials available in Spanish, Spanish speaker on staff

Epilepsy Foundation-National Office, 4351 Garden City Drive, 5th Floor, Landover, MD 20785-4941, (800) 332-1000, (301) 459-3700, E-mail via the Web site., Web: www.epilepsyfoundation.org, Materials available in Spanish, Spanish speaker on staff

FACES: The National Craniofacial Association, P.O. Box 11082, Chattanooga, TN 37401, (800) 332-2373, (423) 266-1632, E-mail: faces@faces-cranio.org, Web: www.faces-cranio.org

Family Center for Technology and Disabilities, Academy for Educational Development (AED), 1825 Connecticut Avenue, NW, 7th Floor, Washington, DC 20009-5721, (202) 884-8068, E-mail: fctd@aed.org, Web: www.fctd.info

Family Empowerment Network:Support for Families Affected by FAS/E, 772 S. Mills Street, Madison, WI 53715, (800) 462-5254, (608) 262-6590, E-mail: fen@fammed.wisc.edu, Web: www.fammed.wisc.edu/fen

Family Resource Center on Disabilities, 20 East Jackson Boulevard, Room 300, Chicago, IL 60604, (800) 952-4199 (Voice/TTY, toll-free in IL only), (312) 939-3513 (Voice), (312) 939-3519 (TTY), Web: www.frcd.org/, Materials available in Spanish, Spanish speaker on staff

Family Village (a global community of disability-related resources), Waisman Center, University of Wisconsin-Madison, 1500 Highland Avenue, Madison, WI 53705-2280, (608) 263-5776 (Voice), (608) 263-0802 (TTY), E-mail: familyvillage@waisman.wisc.edu , Web: www.familyvillage.wisc.edu/

Family Voices (a national coalition speaking for children with special health care needs), 2340 Alamo SE, Suite 102, Albuquerque, NM 87106, (888) 835-5669, (505) 872-4774, E-mail: kidshealth@familyvoices.org, Web: www.familyvoices.org, Materials available in Spanish

Federation of Families for Children's Mental Health, 1101 King Street, Suite 420, Alexandria, VA 22314, (703) 684-7710, E-mail: ffcmh@ffcmh.com, Web: www.ffcmh.org, Materials available in Spanish

First Signs, Inc., P.O. Box 358, Merrimac, MA 01860, (978) 346-4380, E-mail: info@firstsigns.org, Web: www.firstsigns.org

Forward Face (for children with craniofacial conditions), 317 East 34th Street, Suite 901A, New York, NY 10016, (212) 684-5860, E-mail: info@forwardface.org, Web: www.forwardface.org

Foundation for Ichthyosis and Related Skin Types, 1601 Valley Forge Road, Lansdale, PA 19446, Lansdale, PA 19446, (800) 545-3286, (215) 631-1411, E-mail: info@scalyskin.org, Web: www.scalyskin.org, Materials available in Spanish

Genetic Alliance, 4301 Connecticut, N.W., Suite 404, Washington, DC 20008, (800) 336-4363, (202) 966-5557, E-mail: info@geneticalliance.org, Web: www.geneticalliance.org, Materials available in Spanish

Head Start Bureau, Administration on Children, Youth and Families, U.S. Department of Health & Human Services, P.O. Box 1182, Washington, DC 20013, Web: www.acf.dhhs.gov/programs/hsb/

Human Growth Foundation, 997 Glen Cove Avenue, Suite 5, Glen Head, NY 11545, (800) 451-6434, E-mail: hgf1@hgfound.org, Web: www.hgfound.org, Materials available in Spanish

Huntington's Disease Society of America, 158 West 29th Street, 7th Floor, New York, NY 10001-5300, (800) 345-4372, (212) 242-1968, E-mail: hdsainfo@hdsa.org, Web: www.hdsa.org, Materials available in Spanish

Hydrocephalus Association, 870 Market Street #705, San Francisco, CA 94102, (888) 598-3789, (415) 732-7040, E-mail: info@hydroassoc.org, Web: www.hydroassoc.org, Materials available in Spanish

IBM Accessability Center, 11400 Burnet Road, Austin, TX 78758, (800) 426-4832 (Voice), (800) 426-4833 (TTY), E-mail via the Web site., Web: www-3.ibm.com/able/index.html

Immune Deficiency Foundation, 40 W. Chesapeake Avenue, Suite 308, Towson, MD 21204, (800) 296-4433, E-mail: idf@primaryimmune.org, Web: www.primaryimmune.org, Materials available in Spanish

Independent Living Research Utilization Project, The Institute for Rehabilitation and Research, 2323 South Sheppard, Suite 1000, Houston, TX 77019, (713) 520-0232 (Voice/TTY), E-mail: ilru@ilru.org, Web: www.ilru.org, Spanish speaker on staff

International Dyslexia Association (formerly the Orton Dyslexia Society), Chester Building #382, 8600 LaSalle Road, Baltimore, MD 21286-2044, (800) 222-3123, (410) 296-0232, E-mail: info@interdys.org, Web: www.interdys.org, Materials available in Spanish

International Resource Center for Down Syndrome, Keith Building, 1621 Euclid Avenue, Suite 802, Cleveland, OH 44115, (216) 621-5858, (800) 899-3039 (toll-free in OH only)

International Rett Syndrome Association, 9121 Piscataway Rd., Clinton, MD 20735-2561, (800) 818-7388, (301) 856-3334, E-mail: irsa@rettsyndrome.org, Web: www.rettsyndrome.org, Materials available in Spanish

Internet Mental Health (Web site only), E-mail: internetmentalhealth@telus.net, Web: www.mentalhealth.com

Job Accommodation Network (JAN), West Virginia University, P.O. Box 6080, Morgantown, WV 26506-6080, (800) 526-7234 (Voice/TTY), (800) 232-9675 (Voice/TTY, information on the ADA), E-mail: jan@jan.wvu.edu, Web: www.jan.wvu.edu, Materials available in Spanish, Spanish speaker on staff

Kristin Brooks Hope Center, 2001 N. Beauregard St., 12th floor, Alexandria, VA 22311, (800) 784-2433 (Nat'l Hopeline Network), (703) 837-3364, E-mail: info@hopeline.com, Web: www.livewithdepression.org

LDOnline (Web site on learning disabilities), Web: www.ldonline.org, Spanish site: www.ldonline.org/ccldinfo/spanish_index.html

Learning Disabilities Association of America (LDA), 4156 Library Road, Pittsburgh, PA 15234, (412) 341-1515, E-mail: info@ldaamerica.org, Web: www.ldaamerica.org

Let's Face It USA (for information and support on facial differences), P.O. Box 29972, Bellingham, WA 98228-1972, (360) 676-7325, E-mail: letsfaceit@faceit.org, Web: www.faceit.org

Leukemia & Lymphoma Society (formerly Leukemia Society of America), 1311 Mamaroneck Ave., White Plains, NY 10605, (800) 955-4572, (914) 949-5213, E-mail: infocenter@leukemia-lymphoma.org, Web: www.leukemia-lymphoma.org, or www.leukemia.org, Materials available in Spanish, Spanish speaker on staff

Little People of America-National Headquarters, 5289 NE Elam Young Parkway, Suite F-100 , Hillsboro, OR 97124, (888) 572-2001, E-mail: info@lpaonline.org, Web: www.lpaonline.org, Spanish speaker on staff

Lupus Foundation of America, 2000 L Street NW, Suite 710, Washington, DC 20036, (800) 558-0121, (800) 558-0231 (españ, ol), (202) 349-1155, E-mail: info@lupus.org, Web: www.lupus.org, Materials available in Spanish, Spanish speaker on staff

MAAP Services for the Autism Spectrum (MAAP), P.O. Box 524 , Crown Point, IN 46308, (219) 662-1311, E-mail: chart@netnitco.net, Web: www.maapservices.org

MAGIC Foundation (Major Aspects of Growth Disorders in Children), 6645 W. North Avenue, Oak Park, IL 60302, (708) 383-0808, E-mail: mary@magicfoundation.org, Web: www.magicfoundation.org

March of Dimes Birth Defects Foundation, 1275 Mamaroneck Avenue, White Plains, NY 10605, (914) 428-7100, (888) 663-4637, E-mail: askus@marchofdimes.com, Web: www.marchofdimes.com, Spanish site: www.nacersano.org, Materials available in Spanish, Spanish speaker on staff

Mental Help Net (Web site only), Web: http://mentalhelp.net

MUMS, National Parent-to-Parent Network, 150 Custer Ct., Green Bay, WI 54301-1243, (920) 336-5333, (877) 336-5333 (Parents only), E-mail: mums@netnet.net, Web: www.netnet.net/mums/

Muscular Dystrophy Association (MDA), 3300 East Sunrise Drive, Tucson, AZ 85718, (800) 572-1717, (520) 529-2000, E-mail: mda@mdausa.org, Web: www.mdausa.org, Web site in Spanish: www.mdaenespanol.org, Materials available in Spanish, Spanish speaker on staff

National Alliance for the Mentally Ill (NAMI), Colonial Place Three, 2107 Wilson Blvd, Suite 300, Arlington, VA 22201-3042, (800) 950-6264, (703) 524-7600, (703) 516-7227 (TTY), E-mail: info@nami.org, Web: www.nami.org, Materials available in Spanish

National Association for the Dually Diagnosed (NADD), (mental illness and mental retardation), 132 Fair Street, Kingston, NY 12401, (800) 331-5362, (845) 331-4336, E-mail: info@thenadd.org, Web: www.thenadd.org

National Association of the Deaf, 814 Thayer Avenue, Suite 250, Silver Spring, MD 20910, (301) 587-1788, (301) 587-1789 (TTY), E-mail: nadinfo@nad.org, Web: www.nad.org

National Association of Hospital Hospitality Houses, P.O. Box 18087, Asheville, NC 28814-0087, (800) 542-9730, (828) 253-1188, E-mail: helpinghomes@nahhh.org, Web: www.nahhh.org

National Association of Private Special Education Centers (NAPSEC), 1522 K Street N.W., Suite 1032, Washington, DC 20005, (202) 408-3338, E-mail: napsec@aol.com, Web: www.napsec.com

National Association of Protection and Advocacy Systems (NAPAS), 900 Second Street N.E., Suite 211, Washington, DC 20002, (202) 408-9514 (Voice), (202) 408-9521 (TTY), E-mail: info@napas.org, Web: www.napas.org/

National Ataxia Foundation, 2600 Fernbrook Lane, Suite 119, Minneapolis, MN 55447, (763) 553-0020, E-mail: naf@ataxia.org, Web: www.ataxia.org, Materials available in Spanish

National Attention Deficit Disorder Association, P.O. Box 543, Pottstown, PA 19464, (484) 944-2101, E-mail: mail@add.org, Web: www.add.org

National Brain Tumor Foundation, 22 Battery Street, Suite 612, San Francisco, CA 94111, (800) 934-2873, (415) 834-9970 , E-mail: nbtf@braintumor.org, Web: www.braintumor.org, Materials available in Spanish, Spanish speaker on staff

National Center for Learning Disabilities (NCLD), 381 Park Avenue South, Suite 1401, New York, NY 10016, (212) 545-7510, (888) 575-7373, E-mail: help@getreadytoread.org, Web: www.ld.org, Web: www.getreadytoread.org, Materials available in Spanish

National Center for PTSD (Post-Traumatic Stress Disorder), VA Medical Center (116D), 215 North Main Street, White River Junction, VT 05009, (802) 296-6300, E-mail: ncptsd@ncptsd.org, Web: www.ncptsd.org

National Center for Special Education Personnel and Related Service Providers, 1800 Diagonal Road, Suite 320, Alexandria, VA 22314, (866) 232-6631, (703) 519-3800 Ext. 333, , (703) 519-7008 (TTY), E-mail: Use form at www.personnelcenter.org/contactus.cfm, Web: www.personnelcenter.org

National Center on Physical Activity and Disability (NCPAD), 1640 W. Roosevelt Road, Chicago, IL 60608-6904, (800) 900-8086 (V/TTY), E-mail: ncpad@uic.edu, Web: www.ncpad.org, Materials available in Spanish, Spanish speaker on staff

National Chronic Fatigue Syndrome and Fibromyalgia Association (NCFSFA), P.O. Box 18426, Kansas City, MO 64133, (816) 313-2000, E-mail: information@ncfsfa.org, Web: www.ncfsfa.org

National Council on Independent Living, 1916 Wilson Boulevard, Suite 209, Arlington, VA 22201, (877) 525-3400 (V/TTY), (703) 525-3406, (703) 525-4153 (TTY), E-mail: ncil@ncil.org, Web: www.ncil.org, Spanish speaker on staff

National Down Syndrome Congress, 1370 Center Drive, Suite 102, Atlanta, GA 30338, (800) 232-6372, (770) 604-9500, E-mail: info@ndsccenter.org, Web: www.ndsccenter.org, Parent packet available in Spanish

National Down Syndrome Society, 666 Broadway, 8th Floor, New York, NY 10012-2317, (800) 221-4602, (212) 460-9330, E-mail: info@ndss.org, Web: http://ndss.org, Materials available in Spanish, Spanish speaker on staff

National Eating Disorders Association (formerly Eating Disorders Awareness and Prevention), 603 Stewart Street, Suite 803, Seattle, WA 98101, (800) 931-2237, (206) 382-3587, E-mail: info@NationalEatingDisorders.org, Web: www.nationaleatingdisorders.org, Materials available in Spanish

National Federation for the Blind, 1800 Johnson Street, Baltimore, MD 21230, (410) 659-9314, E-mail: nfb@nfb.org, Web: www.nfb.org, Materials available in Spanish, Spanish speaker on staff

National Fragile X Foundation, P.O. Box 190488, San Francisco, CA 94119-0488, (800) 688-8765, (925) 938-9315, E-mail: NATLFX@FragileX.org, Web: www.fragilex.org, Materials available in Spanish

National Gaucher Foundation, 5410 Edson Lane, Suite 260, Rockville, MD 20852-3130, (800) 428-2437, (301) 816-1515, E-mail: ngf@gaucherdisease.org, Web: www.gaucherdisease.org

National Kidney Foundation, 30 East 33rd Street, New York, NY 10016, (800) 622-9010, (212) 889-2210, E-Mail: info@kidney.org, Web: www.kidney.org, Materials available in Spanish

National Library Service for the Blind & Physically Handicapped, The Library of Congress , 1291 Taylor Street N.W., Washington, DC 20011, (800) 424-8567, (202) 707-5100 (Voice), (202) 707-0744 (TTY), E-mail: nls@loc.gov, Web: www.loc.gov/nls, Materials available in Spanish, Spanish speaker on staff

National Limb Loss Information Center, Amputee Coalition of America, 900 East Hill Avenue, Suite 285, Knoxville, TN 37915-2568, (888) 267-5669, E-mail: nllicinfo@amputee-coalition.org, Web: www.amputee-coalition.org/nllic_about.html, Materials available in Spanish

National Lymphedema Network, 1611 Telegraph Avenue, Suite 1111, Oakland, CA 94612, (800) 541-3259, (510) 208-3200, E-mail: nln@lymphnet.org, Web: www.lymphnet.org

National Mental Health Association, 2001 N. Beauregard, 12th Floor, Alexandria, VA 22311, (800) 969-6642, (703) 684-7722, (800) 433-5959 (TTY), E-mail via the Web site., Web: www.nmha.org, Materials available in Spanish, Spanish speaker on staff

National Mental Health Information Center (formerly the Knowledge Exchange Network), P.O. Box 42557, Washington, DC 20015, (800) 789-2647, (866) 889-2647 (TTY), Web: www.mentalhealth.org, Materials available in Spanish, Spanish speaker on staff

National Multiple Sclerosis Society, 733 Third Avenue, New York, NY 10017, (800) 344-4867, E-mail via the Web site., Web: www.nationalmssociety.org, Materials available in Spanish, Spanish speaker on staff

National Organization for Albinism and Hypopigmentation (NOAH), P.O. Box 959, East Hampstead, NH 03826-0959, (800) 473-2310, (603) 887-2310, E-mail: webmaster@albinism.org, Web: www.albinism.org, Materials available in Spanish

National Organization on Disability (NOD), 910 16th Street N.W., Suite 600, Washington, DC 20006, (202) 293-5960 (Voice), (202) 293-5968 (TTY), E-mail: ability@nod.org, Web: www.nod.org, Spanish speaker on staff

National Organization on Fetal Alcohol Syndrome (NOFAS), 900 17th ST NW, Suite 910, Washington, DC 20006, (800) 666-6327, (202) 785-4585, E-mail: information@nofas.org, Web: www.nofas.org, Materials available in Spanish, Spanish speaker on staff

National Patient Air Transport Hotline, c/o Mercy Medical Airlift, 4620 Haygood Road, Suite 1, Virginia Beach, VA 23445, (800) 296-1217, (757) 318-9174, E-Mail: mercymedical@erols.com, Web: www.patienttravel.org

National Resource Center for Family Centered Practice, University of Iowa, 100 Oakdale Hall, W206 OH, Iowa City, IA 52242-5000, (319) 335-4965, Web: www.uiowa.edu/~nrcfcp, Materials available in Spanish, Spanish speaker on staff

National Resource Center for Paraprofessionals in Education and Related Services, 6526 Old Main Hill, Utah State University, Logan, UT 84322-6526, (435) 797-7272, E-mail: twallace@nrcpara.org , Web: www.nrcpara.org

National Resource Center on Supported Living and Choice, Syracuse University, Center on Human Policy, 805 S. Crouse Avenue, Syracuse, NY 13244-2280, (800) 894-0826, (315) 443-3851, (315) 443-4355 (TTY), E-mail: thechp@sued.syr.edu, Web: http://thechp.syr.edu/nrc.html

National Reye's Syndrome Foundation, P.O. Box 829, Bryan, OH 43506, (800) 233-7393, (419) 636-2679, E-mail: nrsf@reyessyndrome.org, Web: www.reyessyndrome.org, Materials available in Spanish

National Scoliosis Foundation, 5 Cabot Place, Stoughton, MA 02072, (800) 673-6922, (781) 341-6333, E-mail: NSF@scoliosis.org, Web: www.scoliosis.org, Materials available in Spanish

National Sleep Foundation, 1522 K Street, N.W., Suite 500, Washington, DC 20005, (202) 347-3471, E-mail: nsf@sleepfoundation.org, Web: www.sleepfoundation.org, Materials available in Spanish

National Spinal Cord Injury Association, 6701 Democracy Blvd., Suite 300-9, Bethesda, MD 20817, (800) 962-9629, (301) 214-4006, E-mail: info@spinalcord.org, Web: www.spinalcord.org, Spanish speaker on staff

National Stuttering Association, 119 W. 40th Street, 14th Floor, New York, NY 10018, (800) 937-8888, E-mail: info@westutter.org, Web: www.westutter.org

National Tay-Sachs and Allied Diseases Association, 2001 Beacon Street, Suite 204, Brighton, MA 02135, (800) 906-8723, E-mail: info@ntsad.org, Web: www.ntsad.org, Materials available in Spanish

Neurofibromatosis, Inc., 9320 Annapolis Road, Suite 300, Lanham, MD 20706-3123, (800) 942-6825, (301) 918-4600, E-mail: nfinfo@nfinc.org, Web: www.nfinc.org, Materials available in Spanish

NLD (Nonverbal Learning Disorder) on the Web (Web site only) , Web: www.NLDontheweb.org

Nonverbal Learning Disorders Association, 2446 Albany Avenue, West Hartford, CT 06117 , (800) 570-0217 , E-mail: NLDA@nlda.org , Web: www.nlda.org

Obsessive Compulsive Foundation, Inc., 676 State Street, New Haven, CT 06511, (203) 401-2070, E-mail: info@ocfoundation.org, Web: www.ocfoundation.org, Materials available in Spanish, Spanish speaker on staff

Online Asperger Syndrome Information and Support (OASIS) (Web site only), Web: www.udel.edu/bkirby/asperger/frame1.html

Osteogenesis Imperfecta Foundation, 804 Diamond Ave., Suite 210, Gaithersburg, MD 20878, (800) 981-2663, (301) 947-0083, E-mail: bonelink@oif.org, Web: www.oif.org, Materials available in Spanish

Parents Helping Parents: The Parent-Directed Family Resource Center for Children with Special Needs, 3041 Olcott St., Santa Clara, CA 95054, (408) 727-5775, E-mail: info@php.com, Web: www.php.com, Materials available in Spanish, Spanish speaker on staff

Parents of Galactosemic Children, 1519 Magnolia Bluff Dr., Gautier, MS 39553, E-mail: president@galactosemia.org, Web: www.galactosemia.org

Parent to Parent of the United States (Web site only), Web: www.p2pusa.org/index.html

Pathways Awareness Foundation, 150 N. Michigan Avenue, Suite 2100, Chicago, IL 60601, (800) 955-2445, E-mail: friends@pathwaysawareness.org, Web: www.pathwaysawareness.org, Brochure and video available in Spanish

Prader-Willi Syndrome Association, 5700 Midnight Pass Road, Suite 6, Sarasota, FL 34242, (800) 926-4797, (941) 312-0400, E-mail: national@pwsausa.org, Web: www.pwsausa.org, Materials available in Spanish

Recording for the Blind and Dyslexic, The Anne T. Macdonald Center, 20 Roszel Road, Princeton, NJ 08540, (800) 221-4792, (866) 732-3585, E-mail: custserv@rfbd.org, Web: www.rfbd.org

Registry of Interpreters for the Deaf , 333 Commerce Street, Alexandria, VA 22314, (703) 838-0030, (703) 838-0459 (TTY), E-mail: info@rid.org, Web: www.rid.org

RESNA (Rehabilitation Engineering and Assistive Technology Society of North America), 1700 N. Moore Street, Suite 1540, Arlington, VA 22209-1903, (703) 524-6686 (Voice), (703) 524-6639 (TTY), E-mail: info@resna.org, Web: www.resna.org

Schwab Learning, 1650 S. Amphlett Blvd., Suite 300, San Mateo, CA 94402, (800) 230-0988, (650) 655-2410, E-mail: webmaster@schwablearning.org, Web: www.schwablearning.org, Portion of Web site in Spanish

Scleroderma Foundation, 12 Kent Way, Suite 101, Byfield, MA 01922, (800) 722-4673, (978) 463-5843, E-mail: sfinfo@scleroderma.org, Web: www.scleroderma.org, Materials available in Spanish, Can refer to Spanish speaker

Self Help for Hard of Hearing People, Inc. (SHHH), 7910 Woodmont Ave., Suite 1200, Bethesda, MD 20814, (301) 657-2248, (301) 657-2249 (TTY), E-mail: information@hearingloss.org, Web: www.hearingloss.org

Special Needs Advocate for Parents (SNAP), 11835 W. Olympic Blvd, Suite 465, Los Angeles, CA 90069, (888) 310-9889, (310) 479-3755 , E-mail: info@snapinfo.org, Web: www.snapinfo.org

Special Olympics International, 1133 19th Street N.W., Washington, DC 20036, (800) 700-8585, (202) 628-3630, E-mail: info@specialolympics.org, Web: www.specialolympics.org/, Materials available in Spanish and French, Spanish and French speaker on staff

Spina Bifida Association of America, 4590 MacArthur Boulevard, N.W., Suite 250, Washington, D.C. 20007-4226, (800) 621-3141, (202) 944-3285, E-mail: sbaa@sbaa.org, Web: www.sbaa.org, Materials available in Spanish, Spanish speaker on staff

Stuttering Foundation, 3100 Walnut Grove Road #603, P.O. Box 11749, Memphis, TN 38111, (800) 992-9392, (901) 452-7343 , Email: stutter@stutteringhelp.org, Web: www.stutteringhelp.org, Materials available in Spanish

TASH (formerly the Association for Persons with Severe Handicaps), 29 W. Susquehanna Ave., Suite 210, Baltimore, MD 21204, (410) 828-8274 (Voice), (410) 828-1306 (TTY), E-mail: info@tash.org, Web: www.tash.org

Technical Assistance Alliance for Parent Centers, (the Alliance), PACER Center, 8161 Normandale Blvd., Minneapolis, MN 55437-1044, (888) 248-0822, (952) 838-9000 , (952) 838-0190 (TTY), E-mail: alliance@taalliance.org, Web: www.taalliance.org, Materials available in Spanish, Spanish speaker on staff

Tourette Syndrome Association, 42-40 Bell Boulevard, Bayside, NY 11361, (718) 224-2999, E-mail: ts@tsa-usa.org, Web: www.tsa-usa.org, Materials available in Spanish

Trace R&D Center, 1550 Engineering Drive, 2107 Engineering Hall, Madison, WI 53706, (608) 262-6966, (608) 263-5408 (TTY), E-mail: info@trace.wisc.edu, Web: www.trace.wisc.edu/

Tuberous Sclerosis Alliance, 801 Roeder Road, Suite 750, Silver Spring, MD 20910, (800) 225-6872, (301) 562-9890, E-mail: info@tsalliance.org, Web: www.tsalliance.org

United Cerebral Palsy Association, Inc., 1660 L Street, N.W., Suite 700, Washington, DC 20036, (202) 776-0406, (800) 872-5827, (202) 973-7197 (TTY), E-Mail: national@ucp.org or webmaster@ucp.org , Web: www.ucp.org, Materials available in Spanish

United Leukodystrophy Foundation, 2304 Highland Drive, Sycamore, IL 60178, (800) 728-5483, E-mail: ulf@tbcnet.com, Web: www.ulf.org, Materials available in Spanish

U.S. Society of Augmentative and Alternative Communication (USSAAC), P.O. Box 21418, Sarasota, FL 34276, (941) 925-8875, E-mail: USSAAC@msn.com, Web: www.ussaac.org

Vestibular Disorders Association, P.O. Box 13305, Portland, OR 97213 , Portland OR 97208-4467, (800) 837-8428, (503) 229-7705, E-mail: veda@vestibular.org, Web: www.vestibular.org

Williams Syndrome Association, Inc., P.O. Box 297, Clawson, MI 48017-0297, (800) 806-1871, (248) 244-2229, E-mail: info@williams-syndrome.org, Web: www.williams-syndrome.org, Materials available in Spanish

World Association of Persons with disAbilities, 4503 Sunnyview Drive, Suite 1121 , P.O. Box 14111, Oklahoma City, OK 73135 , (405) 672-4440 , E-mail: thehub@wapd.org , Web: www.wapd.org

Zero to Three (National Center for Infants, Toddlers, and Families), 2000 M Street NW, Suite 200, Washington, DC 20036, (800) 899-4301 (for publications), (202) 638-1144, Web: www.zerotothree.org, Materials available in Spanish

Back to top