Resources within the Medical and Healthcare Community

Updated October 2010 | Links checked February 2013Sobre la salud en español | Health resources in SpanishThe doctor says it's... but what is....?Are you looking for information on a health condition or perhaps trying to find health services? There are lots of medical sites out there that explain conditions in terms you don't need to be a doctor to understand. And there are sites that can help you locate healthcare services in your community. Here … [Read more...]

Health care transition for youth with special health care needs

Visit the National Health Care Transition Center, which disseminates health care transition best practices in primary care medical homes and specialty settings for youth and young adults with special health care needs.   … [Read more...]

Organize your child’s medical records

This 2-page brief gives great suggestions and several step-by-step instructions for getting your child's medical records and then organizing them. (Posted July 26, 2011)   … [Read more...]

Family-to-Family Health Information Center

A service of PACER Center, the Family-to-Family Health Information Center (F2F HIC) serves as a central source for families of children and young adults with special health care needs and disabilities to obtain support, advocacy, and information about the health care system.  … [Read more...]

Provider’s guide for the care of women with physical disabilities & chronic medical conditions

This guide is designed for clinicians to improve knowledge and practice in providing care to women with physical disabilities and chronic health conditions. While the first sections focus on access to general medical care and removing common barriers, other sections cover the pelvic exam, cancer screening, contraception, pregnancy, menopause, aging, health promotion, as well as other critical components of comprehensive reproductive health care. (posted … [Read more...]

Health-care decision making for people with ID

“My Health – My Decision” is part of a larger education initiative regarding informed consent and decision-making. The curriculum was developed by a team of people with disabilities and experts in supporting them. Key factors in the program include: introducing skills needed to help people with intellectual disabilities become more meaningfully involved in their healthcare decisions; co-presenting by people with disabilities and supporting staff/volunteers; … [Read more...]

NOTICE: The National Dissemination Center for Children with Disabilities (NICHCY) is no longer in operation. Our funding from the U.S. Department of Education’s Office of Special Education Programs (OSEP) ended on September 30, 2013. Our website and all its free resources will remain available until September 30, 2014.