Rheumatic Fever

___________________________Alert! Alert! Because NICHCY’s website will only remain online until September 30, 2014, most of its rich content has moved to a new home, the Center for Parent Information and Resources (CPIR), where it can be kept up to date. The new address of the Rheumatic Fever fact sheet at the CPIR is:http://www.parentcenterhub.org/repository/ohi-rheumatic/___________________________August 2009The Individuals with Disabilities … [Read more...]

Sickle Cell Anemia

_________________________________Alert! Alert! Because NICHCY’s website will only remain online until September 30, 2014, most of its rich content has moved to a new home, the Center for Parent Information and Resources (CPIR), where it can be kept up to date. The new address of the Sickle Cell Anemia fact sheet at the CPIR is:http://www.parentcenterhub.org/repository/ohi-sicklecell/_________________________________August 2009The Individuals … [Read more...]

Tourette Syndrome

_________________________________Alert! Alert! Because NICHCY’s website will only remain online until September 30, 2014, most of its rich content has moved to a new home, the Center for Parent Information and Resources (CPIR), where it can be kept up to date. The new address of the fact sheet on Tourette Syndrome at the CPIR is:http://www.parentcenterhub.org/repository/ohi-tourette/_________________________________August 2009The Individuals … [Read more...]

Attention-Deficit/Hyperactivity Disorder (AD/HD)

Disability Fact Sheet 19 (FS19) Updated February 2013PDF versionEn español | In Spanish__________________________________________________________ Alert! Alert!  Because NICHCY’s website will only remain online until September 30, 2014, most of its rich content has moved to a new home, the Center for Parent Information and Resources (CPIR), where it can be kept up to date. The new address of this fact sheet on AD/HD at the CPIR is: http://www.parentcenterhub.org/repository/adhd/ … [Read more...]

Organize your child’s medical records

This 2-page brief gives great suggestions and several step-by-step instructions for getting your child's medical records and then organizing them. (Posted July 26, 2011) http://www.pacer.org/health/pdfs/HIAC-h17.pdf   … [Read more...]

Educational rights for children with AD/HD: A primer for parents

This primer for parents is aimed at helping parents recognize attention-deficit/hyperactivity disorder (AD/HD) and learn about the two main laws, the Individuals with Disabilities Education Act (IDEA) and Section 504 of the Rehabilitation Act of 1973, that protect the rights of children with disabilities in public schools. In addition to discussing the parents’ rights and responsibilities in relation to special education, the primer provides parents … [Read more...]

Chronic conditions and school

This webpage of the American Academy of Pediatrics answers the following question posed by a parent: My child has a chronic health condition. What do I need to tell the school?  The first sentence of AAP's answer is: If your child has special health needs, the school should have a written document outlining a health care and emergency plan. The remainder of the article spells out the details of what parents and schools need to know. (posted December … [Read more...]

Caring for the medically fragile child in the school setting

The presence of children with special healthcare needs in schools has broadened the responsibilities of teachers, school nurses, paraprofessionals and other school employees. This publication, The Medically Fragile Child: Caring for Children with Special Healthcare Needs in the School Setting, comes from the American Federation of Teachers (AFT). It educates school personnel on their roles and responsibilities in relation to children with special healthcare … [Read more...]

NOTICE: NICHCY is going away, but its resources are not. Find hundreds of legacy NICHCY publications, as well as our training curriculum on IDEA 2004, in the Center for Parent Information and Resources' Library at http://www.parentcenterhub.org/resources. This website will remain available until September 30, 2014. After that date, web visitors will be automatically redirected to http://www.parentcenterhub.org.