Specific Disabilities

En español | In Spanish NICHCY offers brief, but detailed fact sheets on specific disabilities. Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise in that disability. Alert! Alert!  Because NICHCY’s website will only remain online until September 30, 2014, most of its rich content has moved to a new … [Read more...]

Rare Disorders

_________________________________Alert! Alert! Because NICHCY’s website will only remain online until September 30, 2014, most of its rich content has moved to a new home, the Center for Parent Information and Resources (CPIR), where it can be kept up to date. The new address of the Rare Disorders fact sheet at the CPIR is:http://www.parentcenterhub.org/repository/raredisorders/_________________________________ February 2011Alone we are rare. … [Read more...]

Didn’t Find the Disability You Were Looking For?

If you didn't find the disability of your interest listed in our fact sheets or in IDEA's disability categories, don't give up quite yet. We have three specific suggestions! Look within IDEA's definitions Is it a rare disorder? Use the SEARCH box   ________________________ Suggestion 1: Check the alphabetical list below to see if the disability is listed there. Many of IDEA's disability categories and definitions explicitly mention … [Read more...]

February 2011 | News You Can Use

February 2011IN THIS ISSUEThis Month from the National Dissemination CenterIt All Starts...in Families...and CommunitiesThe Little Ones: Early Intervention/Early ChildhoodSchools, K-12State & System ToolsSpecial Focus: Rare DisordersGreetings! Happy Day-After Groundhog's Day! Is spring just around the corner? Seems a bit hard to believe, no matter what the groundhog saw or didn't see. There are many great resources coming from OSEP's TA&D … [Read more...]

Students Living With a Genetic Condition: A Guide for Parents

You know how to identify and manage symptoms at home, and it may be scary to have someone else manage your child’s medical care in your absence. This guide provides information that may be helpful when writing a letter or when preparing to meet with your student’s teacher, school nurse, and physical education teacher or coach. This may also be a useful resource for bus drivers, babysitters, church leaders, or any other potential caregiver. http://tinyurl.com/23neulr … [Read more...]

GINA–the law against genetic discrimination

With genetic testing becoming increasingly pervasive in medical care and our daily lives, three of the most prominent organizations in genetics (the Genetics and Public Policy Center at Johns Hopkins University, the National Coalition for Health Professional Education in Genetics, and Genetic Alliance) have teamed up to produce educational materials about the Genetic Information Nondiscrimination Act (GINA), a landmark federal law that protects individuals … [Read more...]

Tips for those with an undiagnosed condition

Despite years of investigation and struggle, many disabilities and disorders are not diagnosed. What is it? If you live with an undiagnosed condition, or know someone who does, this article may be helpful.http://rarediseases.info.nih.gov/GARD/TipsForAnUndiagnosedCondition.aspx … [Read more...]

NOTICE: NICHCY is going away, but its resources are not. Find hundreds of legacy NICHCY publications, as well as our training curriculum on IDEA 2004, in the Center for Parent Information and Resources' Library at http://www.parentcenterhub.org/resources. This website will remain available until September 30, 2014. After that date, web visitors will be automatically redirected to http://www.parentcenterhub.org.