Rare Disorders

_________________________________Alert! Alert! Because NICHCY’s website will only remain online until September 30, 2014, most of its rich content has moved to a new home, the Center for Parent Information and Resources (CPIR), where it can be kept up to date. The new address of the Rare Disorders fact sheet at the CPIR is:http://www.parentcenterhub.org/repository/raredisorders/_________________________________ February 2011Alone we are rare. … [Read more...]

Learning about an undiagnosed condition in a child

Many disabilities and disorders go undiagnosed, even after extensive evaluation and medical testing. If this is your situation, you may want to read this article from the Human Genome Project.http://www.genome.gov/17515951 … [Read more...]

Tips for those with an undiagnosed condition

Despite years of investigation and struggle, many disabilities and disorders are not diagnosed. What is it? If you live with an undiagnosed condition, or know someone who does, this article may be helpful.http://rarediseases.info.nih.gov/GARD/TipsForAnUndiagnosedCondition.aspx … [Read more...]

NOTICE: NICHCY is going away, but its resources are not. Find hundreds of legacy NICHCY publications, as well as our training curriculum on IDEA 2004, in the Center for Parent Information and Resources' Library at http://www.parentcenterhub.org/resources. This website will remain available until September 30, 2014. After that date, web visitors will be automatically redirected to http://www.parentcenterhub.org.