Fact sheets for youth with disabilities, written by youth with disabilities

These fact sheets come from KASA, which stands for Kids as Self-Advocates. KASA offers more than 60 fact sheets written by youth with disabilities on its Advisory Board and youth writers from its network. Great stuff. http://www.fvkasa.org/resources/index.php … [Read more...]

Effective reading interventions for students with LD

Many a teacher, parent, and student with learning disabilities will want to visit this LDonline page. http://www.ldonline.org/article/33084 … [Read more...]

Understanding genetics

Understanding Genetics is a resource of the Genetic Alliance. It begins with a basic introduction to genetics concepts, followed by detailed information on topics such as diagnosis of genetic conditions, family history, newborn screening, genetic counseling, understanding patient stories, and ethical, legal, and social issues in genetics. http://www.geneticalliance.org/understanding.genetics … [Read more...]

Students Living With a Genetic Condition: A Guide for Parents

You know how to identify and manage symptoms at home, and it may be scary to have someone else manage your child’s medical care in your absence. This guide provides information that may be helpful when writing a letter or when preparing to meet with your student’s teacher, school nurse, and physical education teacher or coach. This may also be a useful resource for bus drivers, babysitters, church leaders, or any other potential caregiver. http://tinyurl.com/23neulr … [Read more...]

GINA–the law against genetic discrimination

With genetic testing becoming increasingly pervasive in medical care and our daily lives, three of the most prominent organizations in genetics (the Genetics and Public Policy Center at Johns Hopkins University, the National Coalition for Health Professional Education in Genetics, and Genetic Alliance) have teamed up to produce educational materials about the Genetic Information Nondiscrimination Act (GINA), a landmark federal law that protects individuals … [Read more...]

Learning about an undiagnosed condition in a child

Many disabilities and disorders go undiagnosed, even after extensive evaluation and medical testing. If this is your situation, you may want to read this article from the Human Genome Project.http://www.genome.gov/17515951 … [Read more...]

Tips for those with an undiagnosed condition

Despite years of investigation and struggle, many disabilities and disorders are not diagnosed. What is it? If you live with an undiagnosed condition, or know someone who does, this article may be helpful.http://rarediseases.info.nih.gov/GARD/TipsForAnUndiagnosedCondition.aspx … [Read more...]

The Undiagnosed Disease Program at NIH

NIH stands for the National Institutes of Health, which involves itself deeply in medical research on diseases and disabilities. It operates The Undiagnosed Disease Program, which focuses its work on trying to give people a diagnosis of their long-term "mystery" condition. http://rarediseases.info.nih.gov/Resources.aspx?PageID=31 … [Read more...]

Quality Indicators for Inclusive Childhood Programs

“Quality Indicators of Inclusive Programs/Practices: A Compilation of Selected Resources” lets you connect with many different resources in one place, which allows for easy comparison of potential indicators of quality. National and state-developed resources are contained within this September 2010 document. From NECTAC, the National Early Childhood Technical Assistance Center. (resource updated, December 12, 2012) http://www.nectac.org/~pdfs/pubs/qualityindicatorsinclusion.pdf … [Read more...]

Sample 504 plans

Wondering what a 504 Plan should look like? These templates and accommodation lists, put on the Web by school districts and disability organizations, can give parents and schools an idea of what to look at and look for when working together to develop a plan for a child.http://specialchildren.about.com/od/504s/qt/sample504.htm … [Read more...]

NOTICE: The National Dissemination Center for Children with Disabilities (NICHCY) is no longer in operation. Our funding from the U.S. Department of Education’s Office of Special Education Programs (OSEP) ended on September 30, 2013. Our website and all its free resources will remain available until September 30, 2014.